Leadership Change

A little over twelve years ago, Sisters by Heart sent out its first care package. A few months later, we officially obtained our 501(c)(3) status and the incredible Stacey Lihn stepped into the formidable role as our founding President.

Stacey’s Legacy

Over the past decade, she has shaped our vision and dreamed bigger for ourselves than we ever could have imagined. Under her dedicated and tireless leadership, Sisters by Heart has expanded from reaching newly diagnosed parents facing an HLHS diagnosis, to entire families, children and adults living with not just HLHS, but all single ventricle defects. Along the way, we have developed partnerships with the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC),

Looking Toward the Future

Lacie is passionate about empowering single ventricle families throughout their journey by relentlessly spreading a message of hope and by delivering support through education, collaboration and advocacy. We are excited to have Lacie’s leadership to further the mission of Sisters by Heart!

the Fontan Outcomes Network (FON), and the HLHS Consortium. We have become the preeminent resource of support for newly diagnosed single ventricle families and strive to continue that support throughout the journey. None of this would have been possible without Stacey Lihn’s leadership, and we are profoundly grateful for the more than a decade she dedicated to leading our organization.

Passing the Torch

As Sisters by Heart continues to grow and evolve, we are pleased to announce our new President, Lacie Patterson.  Many in our community know Lacie well as she has been actively involved as a parent partner with NPC-QIC since 2016. She has served as both co-lead and executive sponsor of the dynamic group that created the Tube Weaning Toolkit for centers, and has been part of the NPC-QIC leadership team since 2018. In 2019, Lacie joined the Sisters by Heart Board of Directors in a role that supports our Fontan Families. In addition to her activities on a national level, Lacie has also been active in her local heart communities, serving on hospital patient and family advisory boards and focus groups.