Guides & Toolkits

We’re here to help.

We’re here to help. We hope you find meaningful and valuable information in the resources provided below - to gain insights about single ventricle defects and find hope through others’ eyes and experiences. These resources are geared toward newly diagnosed families or those early in their single ventricle journey. Sisters by Heart endeavors to keep the links below up-to-date, with good information from reliable sources.

Parents, patients, and clinicians: Please feel free to download, print, and/or share any of the below guides and tools with those in need.

“Knowledge not shared is knowledge lost…”