Empowering

patients and families affected by

single ventricle heart defects

About us

Supporting patients and families from diagnosis and beyond.

We are an all volunteer led organization striving to help families dealing with a new single ventricle diagnosis. Our mission expands well beyond diagnosis, providing support, education, and empowerment to patients and families throughout the single ventricle lifespan. We provide care packages to make hospital stays easier and resources to help families better understand the single ventricle journey. All of our volunteers are moms, dads, and patients who have HLHS or other single ventricle defects, and who uniquely understand what you are going through. We are here to help!

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Our Mission

Sisters by Heart provides support, education, and empowerment to patients and families affected by Hypoplastic Left Heart Syndrome (HLHS), and other single ventricle (SV) defects, from initial diagnosis to the Fontan and beyond.

Special care packages for families

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Newly diagnosed families

New Infant Package

If you or someone you know has recently learned your child has a single ventricle defect, please fill out the form below. We’d like to send you a specially designed care package with items to make your hospital stay a little easier. Most of all we want you to know that there is hope and you’re not alone.

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Fontan families

Fontan Care Package

If your family is preparing for your child to undergo their Fontan (3rd staged surgery), then we would like to send them a Super Fontan Care Package! This new package is designed specifically for toddlers and preschoolers to help keep them comfortable and occupied for their hospital stay.

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Help us continue our mission.

Our organization is run by volunteers.
Help us by making a tax-deductible donation.

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