A Community for Patients and Families

At Sisters by Heart, we believe no one should face the single ventricle journey alone. Linked by Heart, a Sisters by Heart Program is a place for patients and families impacted by single ventricle heart disease to connect, share, and support one another throughout every stage of the journey. Members can stay up to date on Sisters by Heart programs, resources, and events that uplift and empower our community. It’s also a place to learn about and engage in meaningful research opportunities that help advance care and improve outcomes. 

Who It’s For

If you or your child has single ventricle heart disease or if your life is touched by this condition in any way, you belong here.

Patients, parents, caregivers, and extended family members are all welcome.