Request A Care Package

Request a care package for a newly diagnosed family

If you have recently learned that your baby has Hypoplastic Left Heart Syndrome or another Single Ventricle Defect, we would like to send your family a special care package. You may also use this form to nominate a family you know.  We have designed this care package specifically for newborns and their families to help keep them comfortable during their hospital stay. 

Please provide us with all the required information below. All information provided is never divulged to third parties outside of Sisters by Heart or our other organizations. If you have any questions, please feel free to email us at info@sistersbyheart.org 

We have several online resources available for download.  You may find them here.

The fields marked with an asterisk (*) are required. 

Recipient Information

Tell us about the patient and family receiving the Newly Diagnosed Care Package.

Account Information
Parent's First Name *
Parent's Last Name *
Parent's Email *
Password *
Confirm Password *
Your Information (if different from above)
First Name
Last Name
Email
Patient Information (if known)
First Name
Last Name
Date of Birth or Expected Delivery Date (mm/dd/yy) *
Gender
Hospital
Diagnosis *
Referred By
Delivery Address for Care Package
Street *
City *
State *
Zip Code *
Phone Number *
Comments, Questions or Special Instructions?
Check Yes if you would like the Mayo Clinic to contact you about Cord Blood Banking
  Yes         No
Check Yes if you would like to receive information about the state of the research happening with our care package sponsor HeartWorks.
  Yes         No
Let us know the names, gender and ages of siblings, to include special items in the care pack for them
Any Other Comments?