World Congress

Sisters by Heart joined the global effort this August at the 8th World Congress of Pediatric Cardiology and Cardiac Surgery in Washington, D.C.  Board Members Meg Didier and Lacie Patterson submitted an abstract and presented the poster titled, “Sisters by Heart: Empowering Patients and Families Affected by Single Ventricle Heart Disease (SVHD).” 

This opportunity was due in part to our new partnership with Global ARCH which brings CHD organizations from around the world together in common purpose. Additionally, Meg gave two presentations at the conference; “The Journey” and “Organized Patient and Provider Collaboration” which provided the patient perspective to navigating life with SVHD as well as a basic structure for effective patient/provider collaboration in care.