Scientific Community

Understanding Research in Single Ventricle Heart Disease

To aid in the understanding of the complex world of single ventricle heart disease, we have curated a selection of resources to help our community navigate research and clinical advancements.

Research Explained

We’ve partnered with NPC-QIC to provide you with in-depth, easy-to-understand explanations of the latest research in single ventricle heart disease. Visit their Research Explained Page for more information.

What is Research?

New to understanding research? These links will guide you through the basics of what research is, why it is important, and how it contributes to advancements in medical care.

• Children and Clinical Studies

• Clinical Research Trials for Parents and Children (NIH)

Clinical Trials

Stay informed about ongoing clinical trials that are critical to advancing treatments and care for single ventricle heart disease. Visit clinicaltrials.gov to find relevant trials and participation opportunities.

Share Your Recruiting Studies

Are you conducting a study that is currently recruiting participants? We invite researchers to share details about their recruiting studies with our community. This helps connect families and patients with opportunities to participate in important research efforts.

• Request for Research Dissemination

If you have any questions or need further assistance, please contact our Director of Scientific Community Engagement at allison@sistersbyheart.org.