Empowering individuals and families affected by single ventricle heart disease
Our Mission
Sisters By Heart provides support, education, and empowerment to individuals and families impacted by single ventricle heart disease (SVHD), from the time of diagnosis through their journey.
About us
Supporting patients and families from diagnosis and beyond.
We are an all volunteer led organization striving to help families dealing with a new single ventricle diagnosis. Our mission expands well beyond diagnosis, providing support, education, and empowerment to patients and families throughout the single ventricle lifespan. We provide care packages to make hospital stays easier and resources to help families better understand the single ventricle journey. All of our volunteers are moms, dads, and patients who have HLHS or other single ventricle defects, and who uniquely understand what you are going through. We are here to help!
Special care packages for families
Newly diagnosed families
New Infant Package
If you or someone you know has recently learned your child has a single ventricle defect, please fill out the form below. We’d like to send you a specially designed care package with items to make your hospital stay a little easier. Most of all we want you to know that there is hope and you’re not alone.
Fontan families
Fontan Care Package
If your family is preparing for your child to undergo their Fontan (3rd staged surgery), then we would like to send them a Super Fontan Care Package! This new package is designed specifically for toddlers and preschoolers to help keep them comfortable and occupied for their hospital stay.
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Help us continue our mission.
Our organization is run by volunteers.
Help us by making a tax-deductible donation.
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