Donor Highlight: The Allen Family

When we first found out Carter was going to be born with HLHS we naturally went to the internet to find out as much information as possible on this terrifying diagnosis. That’s when we happened upon the Sisters By Heart website. There we found an abundance very helpful information and we’re able to request a care package for newly diagnosed families. This was particularly helpful as we knew nothing about the road ahead.

Carter had his Norwood and Glenn and things seemed to be going well. Shortly after his Glenn however he went into progressing heart failure and the decision was made to list him for heart transplant. He received his gift of life just before he turned 7 months old. The items in the care package and the information from both the website and Stacey were a vital part of our journey. Stacey even came and visited us in the hospital. It was incredibly helpful to talk with someone that had experienced some of what we were experiencing.

Once Carter was on the path to recovery we looked into how we could give back to the group which helped us navigate the most difficult of times.

Both of us work at Costco and our employees company wide do a United Way Foundation campaign. We looked into it and discovered we were able to select a charity of our choice for our donations to go to. We knew Sisters by heart was where we wanted to send those funds. This is a campaign Costco does every year and we continue to select SBH to receive our donations. For the past few years we have been apart of organizing a charity golf tournament with proceeds being split between SBH and another charity. Our continued support of Sisters By Heart is just our family doing a small part to help the wonderful group that guided us and supported us through our sons life threatening battle. We could never repay them but any small help we can provide will hopefully let them continue to help families of kiddos born with congenital heart defects.

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Written by Carter’s dad, Matt Allen

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School Advocacy: The Missing Link in Cardiac Follow-Up Care