Fontan Patients
Call to Action
We are looking for individuals with single ventricle circulation, who would be interested in being a guest writer for our upcoming patient blog beginning February 2022. Please reach out to Meg Didier for more information.
“As a Fontan patient myself, I understand the immense value in creating a space for individuals to have their voices and experiences heard. I strongly believe that we will not be able to move forward improving care for individuals with Fontan circulation without the collaboration between providers, patients, and families.”
Meg’s Story
Meg joined Sisters by Heart in 2021 as the Director of Fontan Patients, bringing her knowledge and expertise as a patient with HLHS to the organization. Meg is fiercely passionate about empowering patients to take control of their healthcare and live their best quality of life. This passion led her to co-found, Single Ventricle Patient Day: Teens and Adults hosted by the Fontan Outcomes Network. In addition, Meg also serves as the patient lead of the Building Community and Engagement workgroup for the Fontan Outcomes Network as well as a committee member of the Transition/Lifelong Care Committee for Conquering CHD.