TARA’S STORY
Tara McFadden is a 29 year old woman who wants to address the need for mental health care for individuals with Congenital Heart Defects. Tara was born with Hypoplastic Left Heart Syndrome and has been speaking with families in the CHD community since the age of 8. Over the years, Tara has talked to many parents of younger children and shared her life experiences with them. Meeting so many other individuals with a CHD made her feel part of a community.
Tara’s heart condition has impacted her physically. When she was younger she always wanted to play sports. However, she lacked the endurance required to play at the competitive level. Accepting that fact was challenging. After many attempts at various sports and much frustration, Tara finally made peace with it and found other interests such as playing pool, baking and non-competitive swimming.
In fifth grade, Tara discovered that she had a learning disability and soon understood the importance of self-advocacy. She expressed the modifications she needed to succeed and even made sure to get the proper accommodations throughout college and grad school. While in college Tara worked in the Office of Specialized Services helping others with disabilities. She would speak about the importance of being a self advocate and how to use your accommodations to help achieve academic success.
In fifth grade, Tara discovered that she had a learning disability and soon understood the importance of self-advocacy
Self advocacy has helped Tara not just academically, but also medically. She started experiencing some irregularities with her heart when she was in college. She was working with a team in NYC and did not agree with their care plan so she searched for a different team of doctors. After transferring hospitals, she felt confident in the new team. Tara emphasizes the importance of listening to your body, learning all you can about your CHD, and addressing issues when they arise.
Tara studied social work in college. Her social work classes allowed her to better understand human behavior and herself. She realized how all that she has gone through makes her see the world through a different lens than her classmates. Tara graduated with a masters in social work in 2017 and earned her LSW (license in social work) shortly thereafter. Today, Tara works with adults with developmental disabilities in a day habilitation program teaching them daily living skills and emotional regulation.
After graduating with her LSW Tara ran a CHD support group, for a brief period of time, where she discovered that individuals with a CHD have like mindsets. While running the group she found that they all share similar experiences and speak the same ‘language’ of medical terminology.