Guides & Toolkits

We’re here to help.

We hope you find meaningful and valuable information in the resources provided below.  These resources are geared toward families nearing Fontan or post-Fontan. We endeavor to keep the links below up-to-date, with good information from reliable sources.

Parents, patients, and clinicians:  Please feel free to download, print, and/or share any of the below guides and tools with those in need.

“Knowledge not shared is knowledge lost…”


FON_Bulletin_RaisingToddler.jpg

Raising A Toddler

FON_Bulletin_Preparing.jpg

Preparing For Fontan

FON_Bulletin_Hospitalization.jpg

Fontan Hospitalization