Guides & Toolkits

We’re here to help.

Use this page to learn about HLHS or other single ventricle defects. There is a lot of information out there, and we endeavor to keep the links in the pages below up-to-date, with good information from reliable source.


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SBH Brochure (English)

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SBH Brochure (Spanish)

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Q&A book


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Single Ventricle Journey Guide

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HLHS Book of Hope

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Confronting diagnosis


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Coping Interstage

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Adjusting post glenn

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Tube Feeding Guide


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Raising A Toddler

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Preparing For Fontan

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Fontan Hospitalization