Hypoplastic Left Heart Syndrome (HLHS)

HLHS is a severe congenital heart defect in which the left side of the heart is underdeveloped. The heart's left side has the job of pumping oxygenated blood into the aorta, the large artery that carries blood to the body. In a child with HLHS:

  • The mitral valve, which separates the two left chambers of the heart, is too small (stenotic) or completely closed (atretic)
  • The left ventricle (the lower, pumping chamber) is very small
  • The aortic valve, which separates the left ventricle and the aorta, is too small (stenotic) or completely closed (atretic)

Sisters by Heart (SBH)

 We are a volunteer organization that strives to help moms with newly-diagnosed babies.  We provide care packages to make your stay in hospital a little easier.  We also provide information and links to many resources to help you better understand HLHS. All our volunteers are moms with children who have HLHS and who understand what you are going through.  We are here to help!

Sisters by Heart is funded entirely by tax-free donations.

Mission Statement

Sisters by Heart is a group of heart moms who came together during their CHD journey – some of whom were fortunate to meet prior to their CHD warriors arrival. We’ve supported each other in our journeys with our congenital heart defect children. Knowing the challenges and difficulties we faced upon diagnosis, and more so, upon bringing our HLHS fighters into this world, we created Sisters by Heart to reach out and support parents of the newly diagnosed. A major aspect of our mission is to send care packages to new mothers (and fathers) who are at the beginning of their journey. We want them to know that they are not alone and provide resources and understanding while their child undergoes care and treatment from birth throughout recovery.